Kids With Costly Medical Issues Get Help, But Not Enough

Kaiser Health News staff writer Jenny Gold, working in collaboration with NPR, reports: "Katie Doderer is a very poised 15-year-old with short blond hair and a wide smile. She's a straight A student who loves singing, dancing and performing in musicals. This could be considered something of a miracle. 'I have a complex medical condition known as congenital central hypoventilation – blah — syndrome. CCHS,' Katie explains, stumbling on the full name of her malady. 'Basically my brain doesn't tell me to breathe. So I am reliant on a mechanical ventilator'" (Gold, 8/26). Read the story.

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